HELLO!

The Rheumatoid Arthritis (RA) Joint Self-Exam Study

Help your doctor help you by tracking your swollen and tender joints

About The Study

Can examining your own joints for your RA give useful information to your rheumatologist?

Overview Eligibility Duration Compensation

The RA Joint Self-Exam Study is a study for people with RA to understand if joint self-exams provide information that can be used by their doctor in their RA care and monitoring. The aim of this study is to see if patient participants are able to do their own joint exam with guidance. Patient participants will do a self-exam of their joints to see which joints are tender and/or swollen. Their self-exam will then be compared to the in-person joint exam done by their rheumatologist. This study may help to provide RA patients with access to better care if they are not able to see a rheumatologist in person.

To participate in this study, please sign up below. After that, you will be guided through the following steps:

Register for ArthritisPower. The email address and password you provide when registering will be your login for this study.
Download the ArthritisPower app to your smartphone. Sign in with the email and password used during registration.
Open the ArthritisPower app to start your participation. The app will prompt you to answer questions about your disease. After completing this section, you will be guided through how to do a self-exam of your joints. You will be able to mark whether the joint is tender and/or swollen for each joint.

To participate in this study you must:

Be a U.S. resident

Be an adult, age 19 or older

Be diagnosed by a physician with rheumatoid arthritis

Have a smartphone to download the ArthritisPower app and perform the joint self-exams

Have registered a valid e-mail address with the ArthritisPower app

Be willing to complete joint self-exams within 1 to 6 days before your in-office visit (ideally, within 3 days of your in-office visit)

This is what you’re expected to do.

Your participation in this study will last no more than 7 days and will include a few minutes of extra time at an office visit with your rheumatologist that you have already scheduled for your routine care. Prior to that office visit, you will be asked to use the ArthritisPower app to:

Answer brief questions about your RA and its symptoms

Follow guided prompts on how to perform your own joint self-exam and log your results

Your participation will take about 15 minutes total to complete. It’s important that you take your time examining your joints so that your doctor can receive the most accurate results. We recommend you complete your participation 1 to 3 days before your in-office visit. Please do not complete your participation more than 6 days before your visit.

$50

Participants who successfully complete the study will receive $50 as compensation, which will be given to them by their doctor’s office after their in-office visit.

SIGN UP

The RA Joint Self-Exam Study

No, Thank You

Investigators

The co-principal investigators of this study are:

Swamy Venturupalli, MD, FACR

Jeffrey Curtis, MD, MS, MPH

Ben Nowell, PhD, MSW

Contact Us

Please let us know if you have any questions about participating in the study.

Sponsor Arthritis Power Advisor

Email us at [email protected] or call us at 205-202-0739.

By Phone:

205-202-0739

By Email:

[email protected]

Ben Nowell, Principal Investigator at Global Healthy Living Foundation, CreakyJoints

By Phone:

1-845-348-0400

By Email:

[email protected]

An institutional review board (IRB) is an independent committee established to help protect the rights of research subjects. If you have any questions about your rights as a research subject, and/or concerns or complaints regarding this research study, contact:

By Mail:

Study Subject Adviser

Advarra IRB

6940 Columbia Gateway Drive, Suite 110

Columbia, MD 21046

By Phone Toll Free:

877-992-4724

By Email:

[email protected]

Please reference the following number when contacting the Study Subject Adviser: Pro00065132

PatientSpot registry infrastructure was funded through a Patient-Centered Outcomes Research Institute Award (PCORI Contract Number PPRN-1306-04811). PatientSpot (formerly known as Arthritis Power) was jointly developed by the nonprofit Global Healthy Living Foundation (GHLF), its associated CreakyJoints arthritis patient community, and rheumatology researchers at the University of Alabama at Birmingham (UAB). We reserve the right to change and add sponsors and partner organizations and we also reserve the right to change placement of text on the page. Created by CreakyJoints® patient community in collaboration with patient advocates at Global Healthy Living Foundation (GHLF) and researchers at the University of Alabama at Birmingham (UAB), Arthritis Power (now PatientSpot)’s past participation in PCORnet®, the National Patient-Centered Clinical Research Network, was supported through multiyear, multimillion-dollar Patient-Centered Outcomes Research Institute funding awards [PPRN-1306-04811]. Global Healthy Living Foundation (GHLF), the parent organization of PatientSpot, receives grants, sponsorships and contracts from pharmaceutical manufacturers and private foundations. A full list of GHLF funders is publicly available here: https://www.ghlf.org/our-partners.