Effects of the COVID-19 Pandemic on Patients Living with Vasculitis

By The ArthritisPower TeamMay 10, 2022May 18th, 2022COVID-19

This study analyzes concerns and health behaviors in patients with vasculitis during the early phase of the COVID-19 pandemic in North America. It was found that patients with vasculitis changed how they interact with their health care providers in order to avoid in person appointments. Almost half of patients with vasculitis had a telehealth visit during the pandemic in lieu of an office visit. This study is important because it seeks to understand the challenges of patients living with a chronic autoimmune disease, such as vasculitis.

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PatientSpot registry infrastructure was funded through a Patient-Centered Outcomes Research Institute Award (PCORI Contract Number PPRN-1306-04811). PatientSpot (formerly known as Arthritis Power) was jointly developed by the nonprofit Global Healthy Living Foundation (GHLF), its associated CreakyJoints arthritis patient community, and rheumatology researchers at the University of Alabama at Birmingham (UAB). We reserve the right to change and add sponsors and partner organizations and we also reserve the right to change placement of text on the page. Created by CreakyJoints® patient community in collaboration with patient advocates at Global Healthy Living Foundation (GHLF) and researchers at the University of Alabama at Birmingham (UAB), Arthritis Power (now PatientSpot)’s past participation in PCORnet®, the National Patient-Centered Clinical Research Network, was supported through multiyear, multimillion-dollar Patient-Centered Outcomes Research Institute funding awards [PPRN-1306-04811]. Global Healthy Living Foundation (GHLF), the parent organization of PatientSpot, receives grants, sponsorships and contracts from pharmaceutical manufacturers and private foundations. A full list of GHLF funders is publicly available here: https://www.ghlf.org/our-partners.