This study explores the availability, quantity, and quality of reproductive health information available to adolescent and young adult girls with pediatric-onset rheumatic conditions and their parents.
Researchers surveyed women over 40 who have had at least one pregnancy after their inflammatory arthritis diagnosis. They found that there is a need for better family planning care for women with childbearing potential.
Few studies have assessed how patients’ attitudes and decision-making influence their family sizes. Little is also known about how patients experience other aspects of their reproductive lives, such as menstruation and contraception. Our findings suggest that infertility, but also potentially outsized fear and anxiety related to their diagnoses, may affect the family sizes of women with inflammatory arthritis.
This article from Pediatric Rheumatology by Carandang et al. describes topics that concern adolescent and young adult women with pediatric rheumatic diseases and their parents about reproductive health. Young women and their parents were dissatisfied with the availability, quantity, and quality of reproductive health information they received concerning their rheumatic diseases and participants identified the need for more information on how their rheumatic disease affects their reproductive health. Understanding these needs of young women is the first step in understanding the patient perspective of reproductive health and more research is needed to address these concerns.