This study aims to quantify methotrexate (MTX)-associated side effects in rheumatoid arthritis (RA) or psoriatic arthritis (PsA) patients. In the ArthritisPower app and registry, a self-controlled case series study design with electronic patient-reported outcome measures (e-PROMs) was used.
This virtual, longitudinal study explores the different patient-reported outcomes (PROs) that patients with rheumatic and musculoskeletal diseases consider important for their disease management.
There is limited information available about the diagnostic experience of patients with psoriatic arthritis (PsA). 203 participants were interviewed and surveyed about their diagnostic journey with PsA. Participants reported delays in diagnosis and misdiagnoses and reported joint pain and stiffness as symptoms that led them to seek medical care. Participants with joint pain, swollen joints, and sausage-like fingers or toes were more likely to have a shorter time to diagnosis whereas fatigue, foot problems, stiffness, and back pain symptoms reported by participants led to longer diagnosis times.
In Clinical Rheumatology, Leverenz et al. report a study in which they investigated contraceptive methods used in young women with Rheumatoid Arthritis (RA) and Psoriatic Arthritis (PsA) and correlated the efficacy of the contraceptive methods with the use of concomitant rheumatic medications. Of the 164 women included, women with RA and PsA reported similar utilization of highly effective contraception methods and effective methods, but different utilization of ineffective methods and no methods. These proportions remained similar across subgroups taking methotrexate, anti-TNF biologics, and novel medications. Women with PsA were more likely to report no methods of contraception.
Research for patients, by patients.
A Creakyjoints initiative.
PatientSpot registry infrastructure was funded through a Patient-Centered Outcomes Research Institute Award (PCORI Contract Number PPRN-1306-04811). PatientSpot (formerly known as Arthritis Power) was jointly developed by the nonprofit Global Healthy Living Foundation (GHLF), its associated CreakyJoints arthritis patient community, and rheumatology researchers at the University of Alabama at Birmingham (UAB). We reserve the right to change and add sponsors and partner organizations and we also reserve the right to change placement of text on the page. Created by CreakyJoints® patient community in collaboration with patient advocates at Global Healthy Living Foundation (GHLF) and researchers at the University of Alabama at Birmingham (UAB), Arthritis Power (now PatientSpot)’s past participation in PCORnet®, the National Patient-Centered Clinical Research Network, was supported through multiyear, multimillion-dollar Patient-Centered Outcomes Research Institute funding awards [PPRN-1306-04811]. Global Healthy Living Foundation (GHLF), the parent organization of PatientSpot, receives grants, sponsorships and contracts from pharmaceutical manufacturers and private foundations. A full list of GHLF funders is publicly available here: https://www.ghlf.org/our-partners.
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