Track your symptoms and treatments with these powerful features
As an arthritis patient, you can make a difference in the fight against autoimmune arthritis and related conditions with this free app. Here’s how:
CreakyJoints has teamed up with rheumatology researchers at the University of Alabama at Birmingham to launch ArthritisPower, a non-profit, patient-inspired and patient-managed research initiative.
Track your symptoms and view results wherever it’s convenient for you. ArthritisPower is available for multiple devices and platforms —from desktop to smartphone to tablet.
In 2014, CreakyJoints created a Patient-Powered Research Network called ArthritisPower™ in partnership with the University of Alabama at Birmingham. ArthritisPower is part of the interconnected National Patient-Centered Clinical Research Network (PCORnet), a collaboration of patient groups, registries and health systems.
This innovative, nationwide research network of patients with rheumatoid arthritis, spondyloarthritis (e.g., psoriatic arthritis, ankylosing spondylitis), and other conditions is led by a Patient Governor Group with input from the wider CreakyJoints community, putting patients at the center of all research conducted with ArthritisPower.
“Patient Governors are the critical connection between research scientists and the CreakyJoints community of people living with arthritis. They tell us what issues are important to study from their perspective. They speak from their own experience to flag potential challenges so we can adjust when preparing to do research.”
- Ben Nowell, PhD, Director, Patient-Centered Research at CreakyJoints
Click the picture below to learn more about this dynamic group of leaders.
Seth Ginsberg was diagnosed at 13 with a form of arthritis called Spondyloarthritis, and, at 18, he helped pioneer the world’s first Online Patient Community for the millions of people worldwide suffering from arthritis, naming it CreakyJoints. CreakyJoints has become a model for customized and interactive delivery of patient education, social/support services, advocacy initiatives and patient-centered research. It is the flagship program of the Global Healthy Living Foundation (http://www.GHLF.org), the 501(c)(3) non-profit organization that Ginsberg co-founded with social entrepreneur Louis Tharp. Ginsberg served as the patient representative and advocate on the 2015 American College of Rheumatology RA Treatment Guidelines committee, the body that sets guidelines for care and management of Rheumatoid Arthritis.
Dr. Ben Nowell is the Director of Patient-Centered Research at the Global Healthy Living Foundation and co-Principal Investigator of CreakyJoints ArthritisPower, the Patient-Powered Research Network for inflammatory arthritis. His role is to develop infrastructure to facilitate the meaningful, ongoing participation of CreakyJoints members in patient-centered research and to foster partnerships with leading scientists in musculoskeletal research. Prior to joining the CreakyJoints team, Ben has worked as a medical social worker and Community Long-Term Care Coordinator for evidence-based health services. He has a Master’s degree in Social Welfare (MSW) from the University of California at Berkeley and a doctorate in Social Work (PhD) from Columbia University.
Jeffrey Curtis, MD, MS, MPH, is the William J. Koopman Endowed Professor in Rheumatology and Immunology at the University of Alabama at Birmingham (UAB) and Co-Director of the UAB Center for Education and Research on Therapeutics (CERTs) of Musculoskeletal Disorders, which has a major emphasis on evaluating the comparative effectiveness and safety of medications. Additionally, as the Director of the UAB Arthritis Clinical Intervention Program, he leads the clinical trials unit for the rheumatology division at UAB, with a particular focus on rheumatoid arthritis (RA). He also received a Master of Science (MS) degree in epidemiology at the Harvard School of Public Health and obtained additional training in clinical informatics from Stanford University. The evaluation of the efficacy, comparative effectiveness, and safety of the medications used to treat rheumatoid arthritis and other forms of inflammatory arthritis are among his research interests.
From tracking your symptoms and medications to sharing your experience, ArthritisPower is there for you.
Please keep in mind that throughout your use of ArthritisPower, you can provide feedback or ask questions at any time by contacting us. We’ve listed some frequently asked questions here for your convenience.
Currently our research includes the following conditions: Rheumatoid Arthritis, Ankylosing Spondylitis, Psoriatic Arthritis, Psoriasis, Osteoporosis/Osteopenia/low bone mineral density, Osteoarthritis (degenerative arthritis), Fibromyalgia, Gout, Juvenile Idiopathic Arthritis, Inflammatory Bowel Disease (E.g. Crohn’s, Ulcerati), Lupus, Scleroderma (systemic sclerosis), Polymyositis, and Dermatomyositis.
Yes. The information you provide will only be used for tracking trends among patients. The only time your information would be shared with identifying data is if we are linking the data with a health institution and we want to ensure the correct person’s data is being used. Besides this, your info will not be connected with you in any way.
No! In the event that we do ask for it, it is completely optional. It is not necessary to provide your SSN to participate in ArthritisPower.
Unfortunately, no. The purpose of ArthritisPower is to track your health for both your benefit and the benefit of research. However, we will let you know about research findings to keep you up-to-date on what scientists are learning from the data you are contributing so that you can work with your doctor on your health decision making.
Read what others are saying about ArthritisPower